When three of their four children are diagnosed with retinitis pigmentosa, a rare, incurable disease that leads to severe visual impairment, the Pelletier family sets out to experience all the beauty the world has to offer while they can still see it.

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STORY 

When three of their four children are diagnosed with retinitis pigmentosa, a rare, incurable disease that leads to severe visual impairment, the Pelletier family’s world changes forever. In the face of this life-altering news, Edith Lemay, Sébastien Pelletier and their children set out on a trip around the world to experience all its beauty while they still can. As they fill their memories with breathtaking destinations and once-in-a-lifetime encounters, the family’s love, resilience, and unshakeable sense of wonder ensure that their uncertain future does not define their present.

FILMMAKERS

Daniel Roher, Director 

Daniel Roher is a filmmaker from Toronto, Canada. His first film, “Once Were Brothers: Robbie Robertson and the Band,” was a music documentary executive produced by Martin Scorsese. His follow-up, “Navalny,” won Sundance’s 2022 Festival Favorite Award, the BAFTA Award for Best Documentary, as well as the Academy Award® for Best Documentary Feature. His latest project, “BLINK,” will premiere at the 2024 Telluride Film Festival and will be released by National Geographic Documentary Films in the late fall. In addition to his work in film, he is an accomplished visual artist whose work has been exhibited in galleries around the world. He lives in Los Angeles with his wife, son, and dog, Moose. 

Edmund Stenson, Director 

Edmund Stenson’s work as director, producer and editor spans both documentary and fiction and focuses on social issues, loners and nomads. He recently directed “BLINK,” a National Geographic feature about the Lemay-Pelletier family, who dropped everything and traveled the world after learning three of their four children were losing their vision. Before that, he was an associate editor on BAFTA- and Oscar®-winner “Navalny” (2022), a documentary-thriller about the Russian dissident’s poisoning. In 2018, he directed the award-winning “Finding Fukue,” the viral CBC success that has amassed over 14.5 million views online. He has also cut award-winning documentary features, shorts and television series in English, French and Japanese: most notably, Canadian Screen Award winner “Being Black in Toronto” (2020), “Ciao Plastique” (2020), “Ghosts of Our Forest” (2017), “Ma vie Made in Canada” (2017), “Sourtoe: The Story of the Sorry Cannibal” and “Retour aux sources” aka “The Roots Remain” (2015). Stenson is also somewhat obsessed with the Chilean filmmaker and magician Raúl Ruiz, as well as another kind of magician: Leicester City striker Jamie Vardy. 

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